Sunshine Coast Latin Dance Festival raising funds for Cystic Fibrosis Queensland to support the 65 Cystic Fibrosis Qld members living on the Sunshine Coast.
Cystic Fibrosis (CF) is one of the most common life-shortening genetic conditions affecting Australians. It affects the lungs and the digestive systems.
People living with CF endure a daily regimen of medication and physiotherapy and affects patients’ quality of life. There is no cure.
Every 4 days a child is born with cystic fibrosis
More than one million Australians are carriers of the CF gene
People with CF have a daily physio regime and take up to 60 tablets a day
In May Cystic Fibrosis Qld’s launches its national fundraising campaign, 65 Roses raises awareness and essential funds to extend and improve the quality of life for people with cystic fibrosis.
The 65 Roses story dates back to 1965 when a young boy pronounced cystic fibrosis as 65 Roses. Since then, 65 Roses has been synonymous with our cause and the rose has been adopted as the national symbol for CF.
In memory of Kari-Lee
The festival is a celebration in honour of the memory of Kari-Lee, who was an passionate member of the Sunshine Coast latin dance community, before losing her fight with Cystic Fibrosis four and a half years ago.
Each year we celebrate her life and the lives of those affected by this disease through our shared love of latin dance.
there is new hope thanks to evie
Evie Marshall, 13 of Palmwoods successfully campaigned for Australians with cystic fibrosis, to have access to a life-extending medication called Orkambi. Costing $250,000 per patient per year, the medication was rejected by the Pharmaceutical Benefits Advisory Committee.
Evie became a key driver in gathering national support while managing her own CF. She talked to politicians and wrote letters to the Minister of Health and the manufacturers of Orkambi. After three years of campaigning, the medication was finally recommended and is now sold at $39 per patient per month. As a result, over 1,300 Australians with CF can now live up to 20 years longer.
Funds raised from the Sunshine Coast Latin Dance Festival will go towards helping those living with Cystic Fibrosis on the Sunshine Coast improve their quality of life.
Thank you for your support