Meet Evie

Evie is 13 years old. She loves animals, especially her little dog Squirt. In her spare time she likes to hang out with her friends and little sister, climb trees and swim. She has sparkling eyes, an infectious smile and a great love of adventure.

Evie knows how to make every precious moment of fun count, because she has Cystic Fibrosis.... and that's not much fun.

Un
til recently, in just one year, Evie would:
‚Äč

  • Consume 15 500 tablets

  • Complete 1100 hours of physiotherapy and nebulisers to clear her lungs

  • Spend 3,650 hours connected to a feed pump for nutrition

  • Attend 70+ doctors and specialists appointments in Brisbane

  • Miss between 40 to 60 days of school because she was unwell or in hospital

  • Complete countless CT Scans, blood tests, MRIs, XRays and surgical procedures

Thanks to funds raised for Cystic Fibrosis research, Evie has recently been able to access a revolutionary new medication. This medication will extend her life by 20 years and now means:

  • Less Physiotherapy

  • Half as many tablets

  • Almost no hospital admissions

  • Going to school most days

  • No need to be connected to a feed pump for nutrition

Her quality of life has improved immeasurably and it’s all due to people like you who support Cystic Fibrosis. Evie is one of the lucky ones. Sadly, around half of those with CF don’t have access to the miracle medication like Evie does. It’s vitally important that we keep supporting those with CF so that no one gets left behind. Your support really makes a difference.

Funds raised will go towards helping those living with Cystic Fibrosis on the Sunshine Coast to improve their quality of life and allow them to have more of those precious moments of fun that every kid deserves.

 

Thank you for your support

© 2017 by Sunshine Coast Latin Dance Festival

PO Box 1226, Mooloolaba Qld 4557

Mob: 0403 002 464

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